The Nationalized Health Care of Canada has stuck again.
This is ongoing and started earlier this week but Wisconsin took up the time.
If this doesn’t outrage you, you must be dead, or a Liberal.
But it’s coming to an ObamaCare near you…
London, Ontario Free Press: Jane Sims The London Free Press Moe Maraachli keeps the snapshots of his dying baby boy in an envelope in his jacket pocket.
He pulls out the photos of the son he’s about to lose, trying to understand how a hospital, an Ontario health-related board assigned to judge consent issues, and a London court could say he and his wife can’t take Baby Joseph home to Windsor to die.
“I do my best for my baby. I do my best,” he said Thursday outside the London courthouse, tears in his eyes.
“This is killing, this is criminal . . . I’m sure this is murder.”
This Monday, on Family Day in Ontario, Joseph Maraachli, who’s in a vegetative state from a neurodegenerative disease, will die after his breathing tube is removed from his tiny body at a London hospital, ending an ethical and legal dilemma that tried to balance unwanted suffering with the needs of a child and his family.
“I lose my baby,” his father, 37, who came to Canada from Lebanon 11 years ago, said. “They take him from me.”
“I don’t lose my baby like God take him. They take him. They want to take him.”
“It was basically our family’s word versus the medical system’s world,” said his aunt, Samar Nader, who’s sure she saw Joseph respond to her this week when she touched his head.
“I think in medicine, they’re just looking at the world from a black and white point of view.”
“The family understands the child and for us to witness his death on Monday . . . I don’t know,” she said.
An emotional Superior Court Justice Helen Rady, who called it “heartbreaking” and “such a sad and difficult case”, decided Thursday not to allow the family’s appeal of a decision last month by Ontario’s Consent and Capacity Board to have the child’s breathing tube removed and put in place a do-not-resuscitate order and palliative care.
The baby’s father and mother, Sana Nader, 35, wanted the same treatment for Joseph as was given to their daughter before she died, eight years ago at 18 months – give Joseph a tracheotomy and ventilation, and allow them to take him home to die what they would be a peaceful death.
But Joseph’s doctors say while a tracheotomy – an incision is made in a patient’s airway, to help breathing – may prolong the baby’s life, it’s futile in this case and would likely cause much discomfort. It would certainly also increase the risk of infection and pneumonia, they argue.
“The medical officials would not want this little boy to suffer,” Rady said.
When born in January 2010, Joseph, now 13 months, was a beautiful, normal baby.
But five months later he started having seizures like his sister. By June, he couldn’t swallow.
In October, he stopped breathing while travelling with his parents. He was taken to an Ingersoll hospital, then rushed to the London Health Sciences Centre’s pediatric critical care unit where he’s been ever since.
His father has stayed in London to be with his son.
His mother is in London every weekend and returns to Windsor to look after the couple’s other son, Ali.
Joseph’s on a ventilator and fed through a tube. He’s in what the doctors call “a persistent vegetative state.” The doctors say he’s blind and deaf.
He’s missing all five brain stem reflexes considered necessary for life – gag, cough, eye movement, pupil and cornea responses. His brain deterioration is irreversible.
A team of doctors, including a world-renowned pediatric expert from Toronto’s Hospital for Sick Children, has examined Joseph and agrees he’s dying of the same progressive neurodegenerative disease that claimed his sister.
Joseph’s doctor told the adjudication board that doctors “reluctantly” gave the couple’s daughter a tracheotomy. Since then, doctors have learned “substantially” more about the procedure and determined it isn’t right for Joseph.
The board agreed with Joseph’s attending doctor that the baby has “no hope or chance of ever recovering.”
“While we feel a great deal of empathy for the parents, we held that their view was not in any way realistic,” the board said, adding Joseph’s parents “were blinded by their obvious love” for their child.
The State Board knows better!!! Sound ObamaCare-ish? Yes!
Obamacare establishes the Independent Payment Advisory Board, whose stated responsibility is to develop proposals to reduce the growth of Medicare spending.
His parents fear Joseph will choke to death once the tube is removed. They say he responds to their touch and wanted the board to see him in hospital before deciding.
Rady said it’s unclear what the board would have seen had its members agreed. And she noted that while Joseph’s head and body have grown, it doesn’t mean the medical assessments are wrong.
The case digs deeply into the delicate balance of life versus. suffering.
Ethicist Margaret Somerville, of McGill University’s Centre for Medicine, Ethics and Law, said the case is “a judgment where the parents are giving priority to the prolongation of life and the doctor is giving priority to the quality of that life.”
“I’m sure there’s no doubt in this case that this child has a very poor quality of life, but we do know that health care professionals judge quality of life much lower than people themselves do.”
Somerville said such quality-of-life decisions are delicate and often at odds. What needs to be examined is why the family doesn’t agree with the decision and if their reasons are acceptable, she said.
The board had ordered Joseph’s breathing tube be removed Friday, but Rady said that wasn’t sensitive to the family’s need.
Instead, she ordered they comply by Monday – a statutory holiday in Ontario, to celebrate family – “to afford the whole family adequate time to say their good-byes.”
Rady’s voice broke when she addressed the family. “I hope that in time you’ll find peace,” she said.
Joseph’s father wasn’t satisfied. “It’s not help,” he said later.
His lawyer, Geoff Snow, said he understands Rady’s decision but added, “the loss of a child in any circumstances is tragic and it’s unfortunate that there’s not more than could have been done.”
Lawyer Julie Zamprogna Balles, who acted for the doctor, said Rady’s decision was “well-reasoned and compassionate.”
While the case had “very sad and unfortunate circumstances,” everyone involved, she said, have “focused on Little Joseph’s best interests.”
But a grieving Moe Maraachli said there’s “no humanity” in Canada. He expressed a desire to die himself.
“I stay with him until the last moments and hopefully I go with him,” he said.
THE ETHICAL ISSUE
Whether to provide medical intervention to prolong the life of a dying child who’s in a persistent vegetative state.
THE LEGAL ISSUE
Whether to allow an appeal of a decision by an Ontario health-based board that adjudicates consent issues, to take the child off life support.
LONDON, Ont. – A father who has been battling to stop a London, Ont., hospital from removing his terminally ill son from a ventilator stood his ground Monday and defied a court order requiring him to give consent.
Moe Maraachli says he and his wife Sana Nader are happy the breathing tube keeping their 13-month old son Joseph alive has not yet been removed.
But their fight to get the boy a tracheotomy so they can take him home to die isn’t over.
“I’m very excited because my son doesn’t remove his tube today,” said Maraachli, who has been sleeping at the hospital since Friday.
“All my family is happy. We are happy. We feel it’s really Family Day today.”
The Windsor, Ont., couple has been fighting for months against doctors at Victoria Hospital in London who say their son should be removed from life support because he will not recover from the rare neurological condition that has left him in a vegetative state.
The family fears Joseph will suffer a painful death if the ventilator is removed, and prefers that a tracheotomy be performed so they can take him home to live his remaining days surrounded by people who love him.
The couple’s 18-month-old daughter died almost nine years ago from a similar medical condition. She had a tracheotomy and lived at home for six months before she died, said Maraachli.
But, last Thursday, Ontario Superior Court Justice Helen Rady ordered the couple to agree to take Joseph off the ventilator by 10 a.m. Monday.
The judge was upholding a decision already made by Ontario’s Consent and Capacity Board.
Because the London hospital could not get consent to remove the breathing tube from Joseph’s parents or other family members, it has the right to seek consent from the Office of the Public Guardian and Trustee, said Mark Handelman, Maraachli’s lawyer.
But Maraachli is hoping his son Joseph will be transferred to Michigan’s Children’s Hospital in Detroit.
Joseph has been treated there before under the Ontario Provincial Health Insurance Plan and the family feels they would have another chance at persuading doctors to perform a tracheotomy if he returns there.
The couple’s friends recently contacted the U.S. hospital about a transfer and the London Health Sciences Centre, which Victoria Hospital falls under, was asked to send Joseph’s medical records there on Sunday.
The London hospital sent Joseph’s medical chart by courier to Detroit on Monday, said spokeswoman Laurie Gould.
“At this point in time we have not received any request for transfer,” said Gould.
If a transfer request is made, Gould said her hospital would contact the public guardian and “wait for their direction.”
The London hospital would not need permission from the public guardian to transfer Joseph to Michigan, said Handelman.
Alex Schadenberg, executive director of the Euthanasia Prevention Coalition, called the baby Joseph case sad and tragic.
Schadenberg questioned why doctors, not parents, should have the final say over their baby’s care.
“Is it right that the doctor has now so much power?” asked Schadenberg.
“I think the balance of power has shifted in Ontario too far, and I’m getting very concerned about who has the right to decide.”
Gould said the case is certainly “emotionally charged.”
The hospital has received calls and emails from the public, some offering prayers for the baby, who’s been at the hospital since October, she said.
As cars honked their horns, a couple of dozen people holding signs and photos of the baby held a vigil outside the hospital Monday morning, an hour before the baby was to be removed from the ventilator.
Maraachli’s sister-in-law Samar Nader said the family is “relieved and thankful” for all the support they’ve received from the public.
“It’s true that miracles do happen and I would never have expected for my nephew to live past 10 o’clock without the people’s help,” she said.
(CNN) — A Canadian family fighting to keep their 13-month-old son on a breathing tube says they have been denied a request to have him transferred to a hospital in Michigan.
Moe and Sana Maraachli refused to sign consent when Canadian health officials determined their son Joseph, who suffers from a progressive degenerative neurological disease and was in a persistent vegetative state, should be removed from life support. Joseph is being treated at the London Health Sciences Centre in Ontario.
The Maraachlis reached out to the Children’s Hospital of Michigan in Detroit in hopes of having their son transferred there for continued care.
Family spokesperson Sam Sansalone said the hospital initially agreed to accept the transfer. He said he has since received an email indicating the request has been denied.
Sansalone forwarded an email from the Detroit hospital that he said explains that after a review of Joseph’s records by neurological and intensive care physicians, “we cannot offer Joseph anything that he has not been provided already during his current admission by his current clinical care team … transfer to our facility will not provide him or the family any benefit.”
Vickie Winn, a spokesperson from the Children’s Hospital, confirmed Joseph is not a patient at the hospital but could not offer further comment, citing patient privacy laws.
Sansalone said the family is pursuing at least three other hospitals in other states.
The family says the hospital has it wrong and that their son is not in a persistent vegetative state. Sansalone said they have noted experiences where the baby has responded to being tickled and has jolted when he felt discomfort with examinations or the feeding tubes. They say these are signs he might still have brain function.
However, Canadian health officials disagree. On February 17, they decided Joseph should be removed from life support. The family was given until February 21 to say their goodbyes and sign the consent, but they have yet to do so.
The Maraachlis are seeking a second opinion from what they consider to be an objective source that can review the more than 1,000 pages of Joseph’s medical records and provide a better assessment of their son’s treatment options.
If he is beyond hope, they want him to be able to receive a tracheotomy, where he can be transferred home and die in the care of family instead of in a hospital.
Experts say even if the family is granted this request, caring for a child in this condition is an arduous task.
Dr. David Casarett, director of research and evaluation at the University of Pennsylvania’s Wissahickon Hospice, says patients at home with tracheotomies need monitoring to make sure the airway is clear of secretions, the skin is clean and dry and someone can make sure the incision at the tracheotomy site does not get infected.
“A child’s care would be much more complex if a home ventilator is required, since the parents would need to manage the ventilator with the help of a nurse and respiratory therapist,” he said.
Suzanne Vitadamo, spokesperson for the Terri Schiavo Life & Hope Network and Terri’s sister, issued the following statement:
“It is unacceptable for Canadian Health Allocation Officials and/or the Canadian Government to make decisions for Joseph that will end his life and deny the wishes of his loving parents.
“Every patient, regardless of age, has a right to proper and dignified health care. It is frightening to once again see government usurp the God-given rights of parents to love and care for their child at home, especially when the child is dying.”
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